MEDIA

Happiness Is Seeing Zamora Smile May 31, 2017 8:39 PM

Zamora was a perfect, silly and lovely little girl who was diagnosed with Pediatric Brainstem Glioma, DIPG, on July 15, 2015. “It’s aggressive, so her battle has been hard”, said Zamora’s mom, Marissa. “Diffuse Intrinsic Pontine Glioma, is a rare and aggressive brain cancer that affects the central nervous system. The diagnosis was sudden and the prognosis is terminal, there is a 0% survival rate.”

Marissa has traveled with Zamora back and forth to Germany to get immunotherapy five times in the last year, they went to Bristol England to place a CED catheter in her brain to put chemo directly into the inoperable brain tumor, and will spend three months in Europe, before flying back to USA to get immunotherapy. They are currently in London to get chemo again via CED to her brain tumor.  She will go between Germany and London every 4 weeks, staying a week in London.

The only thing that made Zamora smile while she was home in the Bay Area, were her trips to the therapist where she rides an adaptive bicycle.  One day while Al, from Freedom Concepts was at the clinic fitting another child, Zamora’s mom approached him and shared her story.  He called Ayesha Williamson, E.D. of Tent 32, asked if we could help and immediately connected us on the phone.  We reviewed the situation and granted a bike to be delivered to Zamora’s mom who flew it back to London so that Zamora could smile again!